Yesterday was a little scary for me. We went and met with Connie (one of my nurses) to go over what I should expect during my Chemo treatments. Thanks to a new friend I've met, a lot of the information wasn't a surprise. Please check out her website at www.chemopalooza.com Her name is Kelly, she is 5 years younger than me to the day. We have the same birthday. She was diagnosed last December with Hodgkin's Lymphoma also.
The nurse gave me some hand outs on the medicine I will be taking during Chemo. I should be getting a call on Monday to schedule my first treatment.
ABVD
1. Adriamycin also known as Doxorubicin (doc-oh-ROO-bi-sin)
2. Bleomycin (blee-oh-MYE-sin)
3. Vinblastine (vin-BLAS-teen)
4. Dacarbazine (da-KAR-ba-zeen)
There is a pretty high chance that I am going to loose my hair. According to the nurse I will have chemo treatments every 15 days for 6 to 8 months. Each treatment takes about 4 hours. The day beofre each scheduled treatment I need to get blood drawn so they can check my white blood cell count. If it gets to low, I may have to delay that treatment until we can get it back up. I was given a lot of information, luckily Josh was there also to help me take it all in.
After the appointment, Josh took me to Target and let me pick out an Ipod so I can listen to music during my treatments. I bought an accordion folder to keep all my paperwork straight. It has a matching spiral binder so I can keep notes in. I also bought some puzzle books and a new John Grisham book. I'm not sure if I will feel like reading but just in case. So I decided I should also buy a tote bag to keep all of my stuff together. I'm trying to stay as organized as I can through this craziness.
My Oncologist wants me to get a Portacath (Port) in. I have an appointment July 6th for the consult. According to the booklet the nurse gave me; a port is a small plastic or metal container surgically placed under the skin and attached to a central venous catheter inside the body. Blood and fluids can enter or leave the body through the port using a special needle. The good news in, I won't be awake for that procedure.
On July 9th, I have to get another needle biopsy done. This time it is for bone marrow. When they did the needle biopsy last time into the tumor, I was awake for that. I believe I will be awake for the bone marrow biopsy. Some people have major phobias because of spiders, snakes or hieghts. Mine are needles and surgery. I really get myself worked up to the point I get nauseas. I spoke with the nurse about my fears yesterday and she told me that they will prescribe me a medicine that will make me not care what they do. :)
I should probably go get dressed for the day since its almost noon. Since I quit smoking I have put on some weight (which I really don't need) so I have decided that I am going to be as comfortable as I can through this process. I have invested in cotton shorts and pants with elastic waistbands. They are actually pajama pants, you know the ones with all the fun designs on them. The one's the teenagers where around town. I have Pepsi, Dr. Pepper, Chilies, Plaid, and ones my sister-in-law gave me that are from Tennessee. I know these treatments are going to be tough on me, so I am going to try and be as comfortable as possible.
Okay, like I said earlier, its time to get my day moving. Thanks for taking the time to real my blog.
Love ya,
Jane